Kacie Craig, M.Ed., RT(R)

Greetings! I'm Kacie Craig. My first career was in radiography and radiography education. However, everything changed when my youngest child was diagnosed with SCN8A, an exceedingly rare genetic disorder. This diagnosis completely altered our lives. Despite this, I continued to work as a radiography program director and educator until my daughter turned seven. Eventually, my passion for advocacy led me to embark on a new career path. Presently, I serve as the executive director of a nonprofit organization dedicated to raising awareness, funding research, and providing support to individuals with SCN8A and their families. Witnessing the significant grief experienced by many caregivers, I felt compelled to assist. In 2023, I underwent training in the GRM (Grief Recovery Method), and I am delighted to now offer support to others, just as the GRM has supported me.